Founded in 1950, the Muscular Dystrophy Association is one of the world’s leading nonprofit health organizations, funding research, health care and support services covering more than 40 neuromuscular diseases affecting more than 1 million Americans.
Active in local communities around the country, MDA is dedicated to finding treatments and cures for neuromuscular diseases, and to supporting the individuals and families affected by these diseases.
 

About the Muscular Dystrophy Association:

Health care and support services:

MDA’s comprehensive services program helps individuals and their families meet the challenges imposed by chronic, progressive muscle diseases through:

 

  • A national network of some 200 medical clinics staffed by experts in neuro- muscular diseases, including 41 clinics designated as MDA/ALS centers.  In Houston MDA funds an adult and ALS clinic at the Methodist Neurological Institute and pediatric clinic at Texas Children’s hospital

  • Local support groups and events for individuals and families

  • Assistance locating, obtaining and repairing needed durable medical equipment

  • Online opportunities to connect, share and learn through online communities, care coordination tools and webinars

  • Summer camps: Each year, kids in the Houston Gulf- Coast ages 6-17 attend a free week- long accessible summer camp session in Burton, Texas where they get to be “just kids”

Thanks to MDA-funded research:

  • Disease-causing genetic mutations have been identified for most of the diseases in its program

  • Clinical trials of potential therapies are under way in Duchenne and Becker muscular dystrophies, spinal muscular atrophy, ALS and other diseases

  • The largest drug discovery project for ALS to date is being conducted at the ALS Therapy Development Institute

  • Optimal care guidelines have been devel- oped for several rare conditions

  • A lifesaving enzyme replacement therapy has been developed for Pompe disease

​​​Public and professional health education:​

  • Online and in print, MDA offers a vast library of information about research, clinical trials, health care and daily living strategies. MDA also regularly convenes international scientific meetings and conferences for researchers and MDA clinic directors.

  • Advocacy: MDA represents the needs of the neuromuscular disease community in matters of public policy and research advancement, and facilitates involvement in these areas by the people it serves.
     

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